Tuesday, March 17, 2009

Janneke Grace

Greetings all. This blog has been created as a means to communicate with friends and family regarding our family. As many of you know, Janneke Grace was welcomed into the world on Saturday, March 14. Late Saturday night she was transferred to Sick Kids Hospital in Toronto where she is being well taken care of in the NICU ward.

Janneke is being heavily monitored in the hospital and is undergoing numerous tests this week. She is getting some assistance with her breathing at this point. She is being fed with an NG tube that gives her formula through a tube that enters through her nose. She also had a PICC line inserted that will allow any future IV lines or blood tests to be administered without poking her repeatedly. Like her older sister, it has proven to be next to impossible for the experts to find a vein.

Yesterday she had ultrasounds on her heart, abdomen, and brain and all seems quite normal and in order from that perspective. We also met with a team of geneticists yesterday. Three weeks ago we began a second round of genetic testing with Rachel, our 2 1/2 year old daughter at Sick Kids. We have yet to come to any reasonable conclusion regarding Rachel's diagnosis, but now that Janneke is exhibiting some similar characteristics there is a whole new level of interest regarding possible genetic links. We do not expect any answers quickly, but we do hope someone can connect the dots for us in the future.

In the short term, we covet your prayers for little Janneke's health. We hope that she will soon be able to breathe and eat under her own strength. An ENT (Ears, Nose, Throat) specialist will evaluate her soon and we hope and pray that all will be well. We also covet your prayers for our whole family as we were quite shocked by the turn of events over the last few days. We had anticipated things to go quite well as there were absolutely no indications that there was anything out of the ordinary. Tears have flowed as we embark down a road that we know all too well from our experiences with Rachel.

As you pray please give thanks for the following as well:
*for the excellent care that Janneke receives.
*that Sara is recovering incredibly well from a rather difficult childbirth.
*that Rachel's VON nursing hours have been tripled so that we do not have to worry about Rachel's care as we spend considerable time away from her in Toronto.
*that Rachel is very healthy and well right now - She's actually quite energetic and entertaining.

Pray also for our two oldest girls, as they ask questions like "When is Janneke coming home?" and state things like "I hope Janneke doesn't have as many special needs as Rachel does." And pray for their parents who don't have a clue what to say in response.

We will update this blog periodically as things progress.



rpot

10 comments:

Lisa said...

We are continuing to cover you in prayer as you journey forward together.

Jess said...

We love you, Janneke, and all of you Pots.

Love,
Jess & Tim, Caleb, Nella, and Aleah.

Karen said...

Hi Ralph and Sara! We are thankful for the safe arrival of Janneke and pray that the doctors and nurses can give you clear direction and that God in all his great power can and will grant your family peace. We will continue to pray. Thank you for keeping this blog as I will check it often to pray accordingly.

Anonymous said...

Dear Ralph and Sara.
We are Michelle Fluit's parents.
Our heart aches for you and we cry with you as you go through this journey.
May God love you and give you strength as you care for your family, and now especially little Janneke.
May she be a blessing to you all. We also pray for your older children as they will have many questions.
God is our comfort.
Love,
Mike and Pat Claus

Marlene said...

Thanks for sharing your family story with us and for letting us know your prayer requests. We promise to lift you up in prayer daily.
The Hendersons

Anonymous said...

our prayers are with you....

Jane Langendoen said...

Dear Ralph, Sara and girls,
Your family is in our prayers!

Heather said...

Dear Ralph and Sara,
Emily, Sophia, Rachel Joy

Congratulations on the birth of another daughter and sister!
Praying that God will continue to watch over you all. You are in our thoughts and prayers. Let us know if we can help in any way....since you're just around the corner :)

Take care!
The Baarda's

VandeKuyt family said...

Dear Ralph & Sara
Bernie asked for prayer this morning at church and I talked to him after the service when he told me a little of what you were dealing with and then called me tonight with info on your blog. Thanks for sharing that and we will pray for all you and thank God that you do have support and a caring community to hold you up in prayer when you are unable. We pray God hold you all close.

Martha said...

I don't know you or anyone in your Family. Just found this blog.
I don't know why this has happend to your girls. But I so feel your strength,love and optimism.
I wish praying could take it all back to perfection -but that won't happen. Whatever the purpose is, it will be GOOD, and someday (maybe a long time from now) you will know and it will feel "just right". It will feel complete.
Easter Blessing's to you and yours. (a Mum and RN in Toronto)