Tuesday, April 7, 2009

g-tube

Today was a difficult day.

We are no longer attempting to bottle feed at this time. After observing a swallow study of Janneke today (x-ray of her swallowing ability), we learned that her airway is not protected when she has a bottle. She is taking formula into her stomach, but also into her lungs. She is able to suck and swallow - but not safely. What was particularly unsettling was that her ability to protect her airway with coughing was delayed, if at all present. She is a "silent aspirator".

She is scheduled for a g-tube (tube on/in stomach) within the next two weeks, and, in the meantime, ENT will also look at the structure of her throat, etc. As she grows, we will have the occupational therapist and ENT follow her development. Perhaps in the future, we can try bottle feeding again, but she needs to be stronger and able to protect her airway.

So, another g-tube in the family.

One day at a time...

7 comments:

Jess Brand said...

We're thankful that you were able to discover what Janneke needs, while this is hard hard news to take. Do you have any more pictures you could post? We'd love to see more of Janneke. We're still praying for all of you, strength.

Love
the Brands

Anonymous said...

Here's a big hug and the assurance that we are praying for you. SHALOM!

Rhea said...

Oh I know that sadness. I fought for months for Olivia not to have a g-tube. It was the hardest, but best decison that we made for her. She is getting her button out this month - praise God and and I will pray that this is only temporary. Hugs!!!

Anonymous said...

hi mr and mrs pot
just want you to know we pray for you everyday. our wishes go with you.

From: Carrie

Lisa said...

Saying "Hi" from Kingston. We're sad to hear the latest but know you are making the best decisions for Janneke.

Lisa, Andrea and Wilma
AKA The Travelling Road Show

Mike and Marcella Meinema said...

i hope you guys find peace in your "one day at a time" journey. We keep reading and praying. We think of you often.

Anonymous said...

Mr and Mrs Pot and girls,
I keep praying for your family everyday. May God bless your family in the times to come.
Gabi Veldboom