Tuesday, April 6, 2010

Tuesday update

Thanks again for your warm thoughts and prayers. We appreciate them.

Janneke was stable again today, and we met with neurology and endocrinology. This afternoon, Janneke had an EEG that showed normal brain activity. Receiving a "normal" result brings relief but also more questions. We still don't understand the cause of the seizures, and we can't be certain they won't happen again.

She is undergoing a few more tests, including more bloodwork, to see if there are any other clues.

As with much of the investigation with both Rachel and Janneke, we might not have any answers. Time for me to go back and read the patience and perspective post, I guess.

We are taking turns staying with her. Even though there are capable nurses on the ward, they can't remain bedside, and we are the most familiar with her care, particularly the tube-feedings. It becomes a team approach with us and the nursing staff - who are great!

We appreciate the emails, and our thumbs are sore from texting with the more media-savy folks. Above all, we covet your prayers for our family. Even if nothing medically conclusive comes from this experience, we can conclude that we are emotionally and physically tired.

God walks with us, for which we give thanks.

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6 comments:

The Van Hulzens said...

You are in my thoughts and prayers often. What a blessing that you are able to stay with her in the hospital! Praying for patience for all of you.
heidi van hulzen

Lisa said...

Glad to see an update and hear that there is a normal scan even though it doesn't answer any questions.
Peace and Strength.

Anonymous said...

Thanks for the post. We are praying.
Love,
Jess

superstarmom said...

Yeah Janneke for being seizure-less!!! Ella says that that's the way to go :) Normal results are great, but frustrating too. I remember being told that an EEG is only helpful if they happen to have seizure activity at the time the test is being done. Here's hoping that Janneke's done with seizures :)

As for staying with her, nothing like having mom or dad there for you :) Remember, anything you need done, let us know. I'll try to look for that phenobarb info for you too.
Praying for you guys
Bernice

Gary & Jannie Prinsen said...

Dear Ralph, Sarah & family:

Just wanted to let you know that you are in our thoughts and prayers every day. May God give you strength and patience as you go through this difficult and trying time with Janneke. Just know that God walks beside you every step of the way.

With love

Gary & Jannie Prinsn

Sonja said...

We continue to pray for you. Especially for answers and for a speedy return home to your own beds and daily routines.