Saturday, January 14, 2012

update on Janneke

Thank you for your prayers, comments, and notes of support.  We truly appreciate the encouragement.  Janneke remains at our local hospital while waiting for a bed to be available at McMaster Children's Hospital in Hamilton.


She spends most of her time resting, but there are moments when she is alert and ready for her drums. These moments pass quickly as her sugar levels change.



We acknowledge that many children and adults live with seizure disorders, but what is frustrating to us is that very little is understood about Janneke's seizures.  No one is certain why her blood sugars are not stable, and it is particularly intriguing that her sugars drop after she is fed.  To help create some stability, she is on an IV and is fed almost continuously throughout the day.  Being fed slowly all day and into the evening seems to prevent the sugars from dropping dramatically, but it still isn't solving the problem.

We are thankful she is stable, and with the testing of her levels every hour or every two hours, we are able to anticipate a seizure before it actually happens.  We are thankful for the doctors and nurses caring for Janneke at the local hospital, and we are thankful for the help we are receiving from our community to make it possible for one of us to always be with Janneke.

Once she is admitted to Mac, we will consult with our endocrinologist, who specializes in understanding chemical and hormonal imbalances.  We hope our visit to Mac will be short and helpful.

We are thankful for God's provision of strength, good humour, and community support.

Peace.
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Here is a photo of Rachel with a prayer shawl someone made for our family.  How fitting to have received it just last week.  It is soft and brings warmth - physically and emotionally.  Rachel is particularly drawn to its soft appeal.  We are reminded once again of how important prayer is.






10 comments:

Corrie P said...

Thanks for the the update; we'll continue to pray that the doctors will find a working remedy for Janneke's seizures. It was great seeing you today!

Pamela said...

Bless your heart. I can only imagine how you heart must be feeling. The prayer shawl is precious.

Aunt Linda said...

Praying for strength to your whole family. God has certainly given you strength throughout the years and He will continue to do so. You are in our thoughts. Love you all

Joan DV said...

Praying for you all...I was chceking this thinking of visiting you in Mac this afternoon...keep us posted if you do end up there.

Anonymous said...

Thinking of all of you, wishing I could help.

Julie Pilling said...

Much love and prayers are sent to Janneke and to you.

Anonymous said...

You all are in my prayers miss them both tons give them both a big kiss for me.

Miss J

anya genevieve said...

my prayers are with all of you at this tough time and especially for healing for Janneke. anya

Kimberlie Schenk said...

...Praying...

Jacquie said...

So glad Janneke is stable and in good hands. Continuing to pray for you...
-Jacquie